SEEKING ANSWERS — Henry Sershen (right) and Laszlo Harsing (left) probe the causes of Alzheimer’s Disease at Nathan Kline Institute. — 1991 PEF file photo by Sherry Halbrook

Best hopes for treatments, prevention stopped cold
Budget cuts leave research in tatters, scientists stunned

By SHERRY HALBROOK
Research represents the only hope of recovery for people stricken with such devastating mental illnesses as Alzheimer’s Disease and schizophrenia. Yet the proposed state budget rips and tears at the
research and clinical programs that embody that hope for millions of people.

“It’s chilling to see how this research that has been carefully nurtured for decades would be ravaged at the Nathan Kline Institute in Orangeburg and the NYS Psychiatric Institute in Manhattan — two celebrated research facilities operated by the state Office of Mental Health (OMH),” said PEF President Roger Benson, who testified in February at a state legislative hearing on the budget.

While the union has been waging an advertising and public relations campaign opposing these and other proposed cuts in state programs and services, PEF members have been working with other concerned groups and individuals to educate state legislators about the looming threat.

“The proposed cuts to research are appallingly clumsy,” Benson said. “In many cases, some parts of the research would be saved, while the essential clinical trials or program support services would be trashed. The result would maim the programs and cripple the scientists’ ability to complete their research.”

In fact, the proposed cuts in state funding for these facilities would jeopardize research that has attracted $100 million in federal and private grants.

The state recently invested $40 million in renovating the Nathan Kline facility to ensure its state-of-the-art capability and tripled grant funding there as a result.

Now, Nathan Kline would cease to exist. A few of its grant programs would continue at the site but would be merged into the NYS Psychiatric Institute operation.

“These two institutes enjoy well-earned international reputations for excellence,” Benson said. “Their work is distinctly different, but the programs complement each other.

“This poorly conceived merger would severely undermine the credibility of all of this state’s important research efforts, even at other agencies,” he said. “This is particularly true in light of the plan to close the Institute for Basic Research which is operated by the state Office of Mental Retardation and Developmental Disabilities on Staten Island.

“When the National Institutes of Health and other organizations that fund research see how New York is ravaging these programs, they will be reluctant to entrust future grant funding to any state research here,” said Benson, who is a research scientist at the state Health Department’s famed Wadsworth Center in Albany.

At least 113 jobs at risk

The budget calls for the elimination of 113 state jobs at the institutes.

However, the actual number of people who will lose their jobs is greater than that. The research-grant funding is awarded to the state scientists as principal investigators. If the scientists leave, the grants will be cancelled and the non-state employees funded by the grants will lose their jobs too.

At Nathan Kline, 63 of the 113 staff have been notified that their jobs will be eliminated. The other 50 would be allowed to remain, with 42 continuing their research at the Orangeburg site, but under the name of the NYS Psychiatric Institute. Eight staff in the Health Services Research Lab also would be retained there, but assigned to the OMH central office payroll.

Henry Sershen — a research scientist at Nathan Kline and a steward in PEF Division 235 — said he finds it difficult to follow the logic of how the cuts are being made.

“It appears they would save some of the research into dementia, brain imaging, and schizophrenia,” Sershen said. “But other related parts of these programs, especially those involving clinical research and trials for experimental drugs and treatments would be eliminated.”

Sershen said he was surprised that the state also would end the many years of study invested at Nathan Kline into what triggers violent behavior in some psychiatric patients.

“Violence in state psychiatric facilities is a very serious problem, and we are conducting clinical research here with some of the most difficult patients,” Sershen said. “It took a long time to get approval to bring them here. I have no idea what will happen to them now.”

Another surprising cut, would eliminate the entire maintenance and custodial staff at Nathan Kline.

“It’s unclear who would take care of this state-of-the-art facility that the state just spent so much money to renovate,” Sershen said.

Virginia Warner — a research scientist at the Psychiatric Institute and a PEF Division 254 steward — agreed with Sershen that the cuts are puzzling.

“It’s a peculiar list (of jobs to be eliminated) here,” she said. “I’ve never seen anything like it. They appear to be eliminating a lot of people at our brand new building on Riverside Drive. It looks like they took a big whack.”

The state would eliminate 42 jobs at the Psychiatric Institute — one for every job transferred from Nathan Kline.

“We may have to eliminate more, because they have reduced the maximum number of state positions we are allowed to have filled here from 401 to 384,” Warner said.

“But since we still aren’t be sure how many people will retire before March 31, we can’t be sure how many more filled jobs have to be eliminated,” she said.

Both Warner and Sershen are skeptical that the scientists whose positions are cut will be able to transfer into jobs at other state agencies.

“The state conducts medical research at relatively few sites, and scientists are so specialized they cannot transition easily into other programs,” Sershen said.

Patients, caregivers suffer
PEF member Nunzio Pomara is one of the scientists whose job would be eliminated and his clinical research scrapped. He began his research career in geriatric psychiatry in 1980, coming to Nathan Kline in 1986.

“I’m in charge of a clinical program of geriatric psychiatry,” Pomara said. “We are conducting clinical trials of new treatments for patients with Alzheimer’s Disease and related dementias, and some with Down syndrome. I’m collaborating with PEF member Arthur Dalton at the Institute for Basic Research in this research, which is funded by a private grant.”

Pomara said he has been agonizing over how and when to tell the families of the patients receiving treatment in his program about the state’s threat to pull the plug on it.

“I’ve been afraid to confront the caregivers with this news, because these poor families are already so stressed. They aren’t up to traveling many miles for treatment. And, of course, these experimental drugs would not be available elsewhere.

“Until recently, no medications were approved for treatment of Alzheimer’s in this country. Now three drugs in the same family are available, but they only slow its progression, at best. The medication we are testing is entirely different. We have completed the first phase of testing and have begun the second phase. It would be such a shame to end this study now.” he said.

Pomara is also conducting separate research under a federal grant to discover if there is a way to reverse the negative side effects that certain commonly prescribed drugs have on the memory of elderly patients.

And he is investigating how longterm use of some drugs may also cause certain involuntary muscle activity, such as facial twitches.

“Many millions of people are affected by these various disorders, and the cost of caring for them is staggering. We must develop safe, effective treatments. That’s why it’s hard to understand why the state would stop this research,” Pomara said.

“It has been very shocking to me that no one talked to us before they made these decisions about what to cut.”

COMMUNICATOR HOMEPAGE
Inside This Issue:
Features

PEF fires back in budget battles for state services
PEF fights to raise state revenues
Budget cuts leave research in tatters
Unions may unite in battle over health benefits
DEC: Polluters’ lackies can replace state monitors

Departments
President's Message: NYS budget must be fair
You Said It: Member's letters this month
Health & Safety: Evaluating your safety risks
Member Mobilization: Building Survivor Skills
Nurses' Station: Lobby Day plans for May 5th
Retirees In Action: Fight health insurance hike
PEF Membership Benefits Program & Travel Corp
Members In Action

Union Matters
'Operation Enduring Freedom' with state workers
DOH members ahead in evacuation planning
Call for Delegates: Annual Convention Rules
Member dons dress to raise $$ for charity

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